Before moving to Wisconsin I had never heard of “snow days” just for being too cold.  Today was one of those days.  The high today was -5 with a windchill of -40! With no school Emma spent the day with her good friends baking and crafting.

Kenny, Dana, and I spent our day in Marshfield for Kenny’s neuro. psych appointment.

My sweet buddy – I sometimes wonder what you think of all your doctor appointments or what it feels like to have a seizure or to realize that your left hand doesn’t work quite as well.  At 4 months you were officially diagnosed with Unilateral Closed Lip Schizencephaly after a MRI revealed you have a little cleft or crevice in the right side of your brain.  We had no idea what that would mean for you but you continue to amaze us with all the things you are able to do.  You are currently on Keppra for your seizures but the doctor is still trying to find the right dosage for you to hopefully become seizure free.

 

Today was just a check up to monitor your progress.  The doctor said everything looked good!

After we got back in town you joined in with the fun and helped make your frozen dessert.

Here are some of Emma’s creations from the day.

 

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With such a warm winter day in Wisconsin it was the perfect day for you guys to try out your new snowboards from Christmas.  Grandpa and Grandma Fish really have the ideal land for it at their house in Red Wing.  You both really seemed to get the hang of it quickly.

Kenny – You got pretty tired out after a couple runs but as a kid with mild cerebral palsy you were AMAZING!  We are so proud of your hard work and determination.

You might have fallen asleep if we stayed much longer!

Here is a video we posted on You-Tube from the day.

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