Before moving to Wisconsin I had never heard of “snow days” just for being too cold.  Today was one of those days.  The high today was -5 with a windchill of -40! With no school Emma spent the day with her good friends baking and crafting.

Kenny, Dana, and I spent our day in Marshfield for Kenny’s neuro. psych appointment.

My sweet buddy – I sometimes wonder what you think of all your doctor appointments or what it feels like to have a seizure or to realize that your left hand doesn’t work quite as well.  At 4 months you were officially diagnosed with Unilateral Closed Lip Schizencephaly after a MRI revealed you have a little cleft or crevice in the right side of your brain.  We had no idea what that would mean for you but you continue to amaze us with all the things you are able to do.  You are currently on Keppra for your seizures but the doctor is still trying to find the right dosage for you to hopefully become seizure free.


Today was just a check up to monitor your progress.  The doctor said everything looked good!

After we got back in town you joined in with the fun and helped make your frozen dessert.

Here are some of Emma’s creations from the day.


Tags : , , , | add comments


Posted by danaandtammy on Thursday Jan 1, 2015 Under Daily Life, Health

Happy New Year from all of us!  2014 was definitely a hard year.  I have faith that we will look back and see how God was still faithful through all of it.  For most of the year I suffered from severe fatigue and pain and in the Fall my symptoms progressed to swollen fingers and a face rash which finally let to a diagnosis of rheumatoid arthritis, discoid lupus, and raynauds. After a couple months of being on medication I am thankful how much I am starting to feel better.  The hardest part is that cold weather makes me feel worse and we live in the frozen tundra.

Last January I started a 365 photo project and I actually stuck with it until my health got so bad in November.  Maybe someday those pictures will get blogged:-) With a new year I decided to start fresh and start blogging again.  But this year I am going to try something different.  Most posts will be written to my kids – Emma and Kenny.  Writing isn’t my forte so it mainly be a picture journal but I hope that every now and then they will enjoy looking back at all our crazy adventures and know how much they are loved.

Tags : , | add comments